Director, Patient Advocacy

Scholar Rock is a biopharmaceutical company that discovers, develops, and delivers life-changing therapies for people with serious diseases that have high unmet need. As a global leader in the biology of the transforming growth factor beta (TGFβ) superfamily of cell proteins and named for the visual resemblance of a scholar rock to protein structures, the clinical-stage company is focused on advancing innovative treatments where protein growth factors are fundamental. Over the past decade, the company has created a pipeline with the potential to advance the standard of care for neuromuscular disease, cardiometabolic disorders, cancer, and other conditions where growth factor-targeted drugs can play a transformational role.  Scholar Rock is the only company to show clinical proof of concept for a muscle-targeted treatment in spinal muscular atrophy (SMA). This commitment to unlocking fundamentally different therapeutic approaches is powered by broad application of a proprietary platform, which has developed novel monoclonal antibodies to modulate protein growth factors with extraordinary selectivity. By harnessing cutting-edge science in disease spaces that are historically under-addressed through traditional therapies, Scholar Rock works every day to create new possibilities for patients. Learn more about the company’s approach at ScholarRock.com and follow @ScholarRock and on LinkedIn.
Summary of Position:
Scholar Rock is searching for an experienced patient engagement professional to set strategy and lead U.S. patient advocacy activities with primary focus on Spinal Muscular Atrophy (SMA) and expanding as appropriate to support for earlier pipeline programs including Cardiometabolic Disorders, Immunology, and Oncology.  As a member for the Corporate Affairs organization and reporting to the Vice President of Patient Advocacy, the individual will be an integral team member responsible for managing key advocacy group relationships and initiatives aligned to the business strategy. 
This role will advance Scholar Rock’s mission by: ·       Shaping business decisions based on patient & caregiver perspectives and insights.·       Supporting access to treatment by educating and mobilizing the advocacy community, and identifying and elevating the voices of lived experience; and·       Driving engagements that align to critical business priorities.
Working compliantly with internal stakeholders including Corporate Communications, Commercial, Medical Affairs, and Clinical Operations, the Director will be a key member of the cross-functional teams to advance Scholar Rock’s life-changing research.

Position Responsibilities:

• Partner in the development and execution of the patient advocacy strategy for Spinal Muscular Atrophy and earlier pipeline programs aligned with brand planning and life cycle management processes.
• Collaborate with and advise program teams and functional leaders to deliver value on workstreams that support business goals, including optimizing access, disease state education, internal understanding of patient lived experiences, clinical study approaches.
• Represent community perspectives internally to consistently factor patient perspectives and insights into business decision-making processes.
• Provide regular updates to the business regarding the work and impact of patient advocacy programming and initiatives.
• Maintain and build relationships with key organizations and individuals serving the neuromuscular community and the communities aligned with pipeline programs.
• Attend key conferences and engagements to listen and learn from the patient community.
• Build and execute stakeholder engagement plans to maximize sponsorship benefits for patient-focused conferences and events.
• Identify lived experience voices (patients, caregivers, advocates) to support disease awareness and deepen connection to Scholar Rock’s mission.
• Maintain regular communication and feedback loop with key advocate stakeholders.
• Partner with legal, compliance and regulatory to ensure a compliant approach to all patient engagement and advocacy.
• Support the success of the advocacy team by taking initiative to grow and development themselves and championing the growth and development of team members. 

Candidate Requirements:

• Must thrive working in a fast-paced, innovative environment while remaining flexible, proactive, resourceful and efficient.
• Excellent interpersonal skills, ability to develop important relationships with key stakeholders, good conflict management and negotiation skills, ability to analyze c