Patient Education Manager, NF1 PN, West

This is what you will do: 

The NF1 PN Patient Education Managers (PEMs) are an empathetic and trusted educational resource for NF1 patients and families. They are responsible for engaging with the local NF1 patient community via 1:1 meetings; conducting unbranded and branded patient education at scale through programs; and (in close collaboration with Alexion’s Patient Advocacy team) partnering with local and regional NF1 advocacy groups to further raise awareness of NF1 burden, NF1 disease progression, and NF1 PN treatment. 

In addition to these responsibilities, PEMs also refer patients and caregivers to Case Managers for case management support when starting on Alexion therapy and connect the NF1 community, as appropriate, to local advocacy networks and approved resources to best support patients and their families through the treatment journey.  

You will be responsible for: 

• Developing, in close partnership with Alexion Patient Advocacy and NF1 PN brand marketing, a regional patient engagement plan that strategically supports commercial priorities   

• Coordinating frequently with key cross functional partners to execute local patient outreach compliantly and effectively (e.g.: Compliance, Legal, Marketing, Market Access, Medical, Patient Advocacy, Patient Services, etc.) 

• Educating patients and caregivers via 1:1 meetings, including face-to-face interactions, about NF1 disease state, NF1 PN treatment, and Alexion’s patient support programs 

• When possible, conducting impactful in-person or virtual educational events on behalf of Alexion to deliver disease and product information at scale 

• Building a robust rare disease network of NF1 PN advocates via active participation in local advocacy events to identify educational needs, raise disease awareness, and promote patient empowerment 

• Delivering on data driven performance objectives and effectively tracking and communicating year-to-date progress to cross functional partners and Alexion leadership 

You will need to have: 

• Minimum of 4 ye