Clinical Research Data Specialist (Part-time to Full-time)

University of Colorado Anschutz

Department: Pediatrics – Developmental Pediatrics

Job Title: Clinical Research Data Specialist (Part-time to Full-time)

Position #: 00846388 – Requisition #: 39435

Job Summary:

The eXtraOrdinarY Kids Clinic and Research Program at Children’s Hospital Colorado is seeking a Clinical Science Professional to join our growing research team. Our interdisciplinary program is nationally recognized for advancing care and discovery for children and adolescents with sex chromosome aneuploidies, including Turner, Klinefelter, Trisomy X, XYY, and XXYY syndromes. Our team brings together experts in developmental-behavioral pediatrics, endocrinology, genetic counseling, psychology, neuropsychology, cardiology, nephrology, otolaryngology, audiology, sleep medicine, speech and occupational therapy, nursing, and social work, alongside research service professionals and trainees. We are proud to lead NIH-, foundation-, and advocacy-funded translational research that aims to improve both health outcomes and day-to-day life for the families we serve.

We are looking for a collaborative and detail-oriented individual who is excited to lead data management efforts across multiple studies, help transform data into knowledge, and contribute to a supportive, mission-driven environment. The ideal candidate is someone who enjoys problem-solving, values teamwork, and wants to grow professionally while contributing to research that improves care for children and families. This position offers substantial opportunity for skill development, increasing independence, and participation in scholarly work within a highly collaborative academic environment. Flexible scheduling and hybrid work arrangements are supported, with the expectation of reliability, accountability, and in-person availability for key meetings and collaborative activities. This position is part-time (0.5 FTE); however, there is flexibility to build a full-time (1.0 FTE) role for individuals interested in study coordination, regulatory operations, broader program support, or related work.

Key Responsibilities:

Data Management & REDCap Administration (40%)

• Design, build, and maintain REDCap databases across multiple clinical research studies, including development of instruments aligned with common data elements.

• Lead data quality practices, including validation rules, query management, and preparation for monitoring or audit activities.

• Support role-based data security by coordinating user access, permissions, and related documentation.

• Manage participant records, including creation of unique identifiers (GUID) and appropriate data access group assignment.

• Develop and maintain SOPs for data workflows and train study personnel on standardized data entry and QC practices.

• Create dashboards, tables, visualizations, and analytic datasets for investigators, clinicians, community stakeholders, manuscripts, and grant reporting.

• Work closely with biostatisticians to promote well-structured, analysis-ready data.

• Identify and implement opportunities to improve or automate data capture, integration, and reporting processes.

• Maintain data dictionaries, metadata documentation, and version control to promote reproducibility and cross-study harmonization.

• Collaborate with institutional informatic