Rare Blood Community Liaison - Crossroads

About the Department

The Strategy & Rare Disease (STARS) organization drives the long-term strategic direction of Novo Nordisk Inc. (NNI)/North America Operations (NAO) and leads all US commercial efforts for Novo Nordisk’s Rare Disease portfolio. The mandate of STARS is to facilitate the development and to coordinate the execution of the long-term strategy, defining a sustainable business model in US beyond a 5-year time horizon. This department serves as the insiders of the US market when informing and help shaping upstream decisions around future investments and assets. The Rare Disease portfolio includes products in the hemophilia and growth disorders therapeutic areas, new products in the pipeline, and products acquired through business development efforts in existing and new areas. The STARS team collaborates and partners with groups across NAO, Research & Early Development, Development, innovation hubs across NN, other affiliates, and global. We’re looking for individuals who are enterprise thinkers, inclusive leaders, and strong collaborators, as we embark on shaping our future.

 

The Position

Attends, and when possible, assists with planning events held by patient organizations in his/her territory, and represents Novo Nordisk, Inc. (NNI) at selected national events hosted by those patient organizations. Events may include fundraising/volunteering efforts along with representation at educational meetings.

 

Collaborates with Market Access and Government Affairs teams when advocacy issues arise and as appropriate. Cultivates relationships with patients, caregivers and other community stakeholders by participating in and assisting with community events on behalf of NNI. Establishes and manages relationships with key patient organizations, including local chapters of the National Hemophilia Foundation and, Hemophilia Federation of America chapters etc.

 

Regularly communicates perspectives, findings and insights to STARS leadership through informal and formal (e.g., oral and written presentations) mechanisms Includes sharing insights and competitive intelligence within the hemophilia area. Represents NNI to the Hemophilia patient community and patient organizations (e.g., local hemophilia chapters) with the goal of increasing patient awareness of Novo Nordisk hemophilia products in an assigned territory.

 

Serves as the center of coordination for patient-related activities across patient community and the broader NNI organization (both within STARS and relevant functions outside of STARS) to ensure that learnings from patients, caregivers and other stakeholders are incorporated into the STARS strategy and business decisions.

 

Relationships

Helps identify when home office support and presence is needed at larger community-based events such as chapter meetings and other functions. Member of the Rare Blood Field Force and has interactions with Rare Blood Marketing to provide feedback on development of direct-to-patient materials, tools and programs. Reports directly to Regional Director - Rare Blood and interacts with other Rare Blood Community Liaisons (RBCL)and other relevant NNI functions including Government Affairs.

 

Essential Functions

• Develops direct relationships with patients/caregivers and other hemophilia community members including hemophilia organizations and chapters, state and local advocacy groups
• Executes patient and caregiver educational meetings / exhibits at chapter events, home care meetings, patient conventions, patient dinners, support at community events/camps, etc. about hemophilia and NNI products and services within relevant guidelines
• Plans and conducts meetings with state and local chapters with the goal of educating patients, caregivers, and other stakeholders on NNIs products and services within relevant guidelines
• Promotes NNI hemophilia products and services to patients and caregivers within the hemophilia community
• Coordinates with Regional Directors and Marketing team, regularly sharing insights on how NNI can continue to improve its offering to the hemophilia community
• Coordinates with other RBCLs to prepare internal communications to the STARS team, keeping internal stakeholde