Patient Affairs Intern

Why Sarepta? Why Now?

The promise of genetic medicine has arrived, and Sarepta is at the forefront. We hold a leadership position in Duchenne muscular dystrophy (Duchenne) and are building a robust portfolio of programs across muscle, central nervous system, and cardiac diseases. In 2023, we launched our fourth therapy and the first ever gene therapy to treat Duchenne. 

We’re looking for people who see unlimited potential in themselves and who are motivated by an unwavering commitment to patients.

What Sarepta Offers

At Sarepta, we care deeply about all the people in our community and believe in the importance of supporting them in all aspects of their lives. We aspire to maintain a culture that acknowledges people bring their whole selves to work, and we will strive to help everyone in our community integrate their work and personal lives while maintaining productivity.

The Importance of the Role
 

The Patient Affairs team at Sarepta partners with rare disease communities (including advocacy leaders, individuals affected by rare diseases, and their families) to foster important exchanges as Sarepta strives to transform the lives of individuals living with rare diseases. The individual selected for this internship will have exposure to rare disease patient advocacy from the biotechnology industry’s perspective. You will learn from the perspective of people who are impacted by rare diseases and will see how these insights and perspectives are woven into decision-making throughout drug development.

The Patient Affairs Intern will gain unique exposure to the intersection of biotechnology, patient advocacy, and community engagement. As a patient‑facing function, Patient Affairs sits at the heart of Sarepta’s mission, providing firsthand insight into how rare disease drug development impacts patients, families, and communities.

As the team expands into new disease areas and deepens its patient‑centric strategies and operating models, the intern will support meaningful, mission‑driven projects across patient engagement, operations, grants and sponsorships, project management, patient science programs, and cross‑functional partnerships other projects as needed. This role offers a hands‑on introduction to advocacy in rare disease and serves as a valuable gateway for students exploring careers in STEM, biotech, or patient‑focused roles. The ideal candidate will leverage their interest in STEM, passion for making an impact, and organizational excellence to dive in headfirst into the rare disease advocacy landscape.

The Opportunity to Make a Difference

In this internship, you will contribute to projects that elevate the patient voice, strengthen operational excellence, and support impactful partnerships across the rare disease community. You will gain broad exposure across patient engagement, program operations, grants processes, and cross-functional collaboration, helping advance Sarepta’s mission to support patients and families. 

Key areas of contribution include: 

• Supporting the Route 79 Duchenne Scholarship Program, including selection committee coordination, content development, and patient‑voice integration 

• Assisting with Patient Affairs operational initiatives, such as Patient Voice Events, metrics tracking, internal and external communications, conference engagement execution, etc.  

• Supporting Grants & Sponsorships operations, including tracking submissions, preparing committee materials, and responding to internal updates 

• Contributing to Sarepta’s Patient Science Center, SareptAcademy, through content generation, framework planning, and logistical support 

• Streamlining patient insights and identifying company-wide approaches to share actionable insights, including through the continued development of the patient insights AI platform 

• Attending department meetings, virtual community events, and a selection of other meetings for exposure to the drug development process and community considerations   
   

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