Director, Health Systems Outcomes - US Rare Diseases

Job title: Director, Health Systems Outcomes - US Rare Diseases

Location: Cambridge. MA (Onsite 3x a week)

About the Job

This is a regional field-based position, with the candidate living within 2 hours of the Cambridge Crossing office in Cambridge, MA

We are an innovative global healthcare company, committed to transforming the lives of people with immune challenges, rare diseases and blood disorders, cancers, and neurological disorders. From R&D to sales, our talented teams work together, revolutionizing treatment, continually improving products, understanding unmet needs, and connecting communities. We chase the miracles of science every single day, pursuing progress to make a real impact on millions of patients around the world.

Main Responsibilities:

Hospital & IDN Partnerships in Rare Disease

• Develop long-term, solutions-focused partnerships with hospital systems, IDNs, and Academic Medical centers to ensure seamless patient access to rare disease treatments.

• Partner with hospital executives, pharmacy directors, medical leadership, and patient access teams to understand and address rare disease-specific challenges within institutions.

• Enable field leaders to have collaborative, strategic discussions, ensuring the integration of therapies into treatment pathways.

• Collaborate on development of disease-state education, patient identification initiatives, and multi-disciplinary coordination within hospital systems to improve rare disease care.

Coverage Optimization & Institutional Resource Efficiency

• Align with hospital finance, pharmacy, and reimbursement teams to navigate coverage, billing, coding, and alternative funding solutions for rare disease therapies.

• Provide expertise on 340B programs, buy-and-bill models, inpatient/outpatient reimbursement pathways, and payer contracting.

• Identify and implement patient access solutions, including support programs and institutional affordability initiatives.

Strategic Execution & Cross-functional Leadership

• Develop hospital system-specific execution plans that address institutional priorities, policy barriers, and operational needs.

• Partner cross-functionally with medical affairs, sales, health economics & outcomes research (HEOR), patient services, and government affairs to drive aligned rare disease initiatives.

• Enable hospital sytstem-specific business reviews, product benefit discussions, and key project reviews to advance strategic partnerships.

• Contribute to the voice of the field, bringing real-world health systems insights back to corporate teams to inform national strategy, brand planning, and forecasting.

Business Intelligence & Rare Disease Access Innovation

• Monitor evolving hospital system policies, reimbursement trends, and competitive dynamics to proactively address rare disease access barriers.

• Work with health systems Executives, clinical pharmacists, and department head leaders to co-develop innovative care models and patient management approaches for rare disease populations.

• Identify gaps in patient identification, diagnostic pathways, and treatment access within hospital systems and implement collaborative solutions.

About You

• Bachelor’s degree required; advanced degree (MBA, PharmD, MPH, or related) preferred.

• 10+ years of experience in hospital institutional account management or value-based health systems operations

• Deep expertise in rare diseases, specialty biologics, and hospital systems operations is required.

• Proven track record of working directly with hospitals, IDNs, and AMCs (Academic Medical Centers) to drive access and adoption of complex therapies.

• Experience in developing and executing business plans, identifying growth opportunities, and driving operational efficiencies within hospital systems.

• Excellent cross-functional collaboration skills to align strategy across sales, medical, HEOR, and patient access teams.

• Strong understanding of hospital formulary processes, reimbursement pathways, integrated care models, and value-based care implementation.

• Ability to navigate complex institutional decision-making structures and build consensus across clinical, pharmacy, and administrative teams.

• Excellent strategic thinking, problem-solving, presentations to senior leaders and project management skills with a focus on collaborative partnerships and leading projects.

• Ability to travel up to 70% within the assigned