Director, Patient Advocacy

The Role

Moderna is seeking a Director of Patient Advocacy to work within the entire rare disease organization to develop strong working relationships with Patient Advocacy organizations across the portfolio and progress common objectives to ensure betterment of patient care. Based in Cambridge, MA, this role will be a champion of the patient voice, gather critical insights and will partner closely with R&D, Commercial, Government Affairs, Communications, and other functions to inform a comprehensive, enterprise-wide Patient Advocacy Strategy spanning integrated programs and business priorities, in addition to leading the execution of the strategy with global and local colleagues. In addition, this role will support policy shaping objectives and facilitate engagement of patient groups with regulatory authorities, government and health technology assessment groups to ensure that patient perspective is at the center of all decisions.

Here’s What You’ll Do

• Build the global Patient Advocacy strategy from clinical stage to market for Moderna and lead its successful execution. The role will have global responsibility to develop the patient advocacy strategy across key markets and lead execution of the strategy in collaboration with local teams by providing the expertise and leveraging local relationships.

• Drive, build, and enhance strategic alliances with national and global Patient Advocacy Groups that have a strong interest in rare disease policy through touch bases and other authentic engagements. This includes mapping key patients and rare disease groups in key markets and building relationships that enables progressing critical business objectives and improve patient care. It is important that this role take a global view of patient advocacy and rapidly expand its impact outside the US.

• Lead engagement with various Scientific societies, PAGs, Patient advocacy councils to help build consensus and treatment guidelines when they need to be fully developed or updated.

• Represent Moderna at key Patient Advocacy Conferences and symposia, at national and international scientific congresses in order to progress partnerships that support better patient care.

• Develop and execute Patient Advisory Boards, Patient Leadership Councils and other forums in support of critical objectives pertaining to better understanding the patient true unmet need, gathering insights, supporting the amplification of the patient voice and ultimately, enabling Moderna to become embedded in the rare disease communities and ecosystem to better support patients and external stakeholders.

• Work closely with the government relations, regulatory and access teams to facilitate engagement of patients’ groups with regulatory authorities, government and health technology assessment groups to ensure that patient perspective is at the center of all decisions.

• Collaborate with government relations to develop policy strategies and position papers supporting better patients care, and lead such execution

• Ensure that patient facing materials are meaningful and impactful based on patient advisory group feedback

• Represent the voice of independent patient communities to internal stakeholders to ensure that patient perspectives are integrated into the rare disease pipeline decision-making processes.

• Actively monitor new developments and thought leader insights in the field of patient advocacy and incorporate such developments, ideas, and strategies into the development and execution of programs

• Partner with though leaders to amplify impact and progress business objectives.

• Manage the Patient Advocacy budget and supervise the management of any external partners or agency resources.

• Collaborate with HR and communications in the development and execution of patient- centered materials and company-wide initiatives including disease awareness campaigns and events that connect employees to the patient journey.

Here’s What You’ll Need (Minimum Qualifications)

• Bachelor’s degree

• 10+ years’ experience of relevant patient advocacy or related experience in the biotech/pharma industry the pharmaceutical industry or non-profit advocacy organization

• Demonstrated knowledge of the biotech/pharma industry, including deep understanding of the Legal, Regulatory, and Compliance environment, including a strong understanding of guidelines and best practices for patient advocacy engagement

Here’s What You’ll Bring to the Table (Preferred Qualifications)

• Advanced degree in relevant field a plus

• Ability to champion the voice of patients and families

• Ability to work in a fast-paced environment, prioritize tasks, and successfu