Head of Patient Advocacy Engagement, US AIR and CARE

About us

Based in Parma, Italy, Chiesi is an international research-focused pharmaceuticals and healthcare group with over 85 years’ experience, operating in 30 countries with more than 6,000 employees (Chiesi Group). To achieve its mission of improving people’s quality of life by acting responsibly towards society and the environment, the Group research, develops and markets innovative drugs in its three therapeutic areas: AIR (products and services that promote respiration, from new-born to adult populations), RARE (treatment for patients with rare and ultra-rare diseases) and CARE (products and services that support special care and consumer-facing self-care).
We are proud to be the largest global pharmaceutical group to be awarded B Corp Certification, a recognition of high social and environmental standards. We are a reliable company that adopts and promotes transparent ethical behavior at all levels. 
We are committed to embrace diversity, inclusion and equal opportunities. In fact, we are a global family made up of different cultures, different genders, generations, ethnicities, abilities, sexual identities and many other enriching diversities. 

 

Chiesi USA

Chiesi USA is a specialty pharmaceutical company focused on developing and promoting products for the hospital, adjacent specialty and rare disease markets. We are a B Corp™ and Benefit company awarded Top Employer status for six consecutive years and certified as a Great Place to Work. 
At Chiesi, we share an entrepreneurial spirit and act as a force for good, pursuing high social and environmental standards, to ensure the wellbeing of our people, patients, and communities. We offer a work environment where professionals have the opportunity to build a purposeful career focused on helping others while achieving a fulfilling work-life balance, meeting exciting challenges, and engaging in important and rewarding work.

 

What we offer

Chiesi offers competitive benefits, services, and programs that enrich the personal and professional lives of our employees.   Our shared values of passion, innovation, trust and integrity bring out the individual talents and diverse perspectives of each of our colleagues.  Our environment encourages each individual to reach his or her full potential and drive outstanding results. We celebrate that “Every one of us is different. Every one of us is Chiesi."

 

Who we are looking for

Purpose

As the expert in US patient insights, the person in this position will be the face of Chiesi to patient advocacy organizations and will champion the patient voice to educate internal cross-functional teams and drive patient-centered ideas and programs. This person will be responsible for establishing a US AIR/CARE patient advocacy engagement philosophy and strategy, managing productive relationships with patient advocacy groups in therapeutic areas covered within the AIR and CARE business units, and developing and executing patient advocacy engagement strategies in the US. Current disease and therapeutic areas include asthma, chronic obstructive pulmonary disease, pulmonary arterial hypertension, neonatology and neurology, and these could expand as the company grows. 

Main Responsibilities

• Enhance the Function: Refine Chiesi’s AIR and CARE patient advocacy group engagement philosophy and goals. Contribute to functional creation including development of procedures, relevant internal policies, and KPIs. Liaise with the Global AIR, RARE and CARE patient advocacy teams to exchange best practices. 
• Build & Execute the Strategy: Create and execute annual US AIR and CARE patient advocacy group engagement objectives, strategies tactics and budget plans. Propose and implement patient advocacy programs and partnerships that include educational programs, patient experience surveys, advisory boards, patient speaker engagement, clinical trial awareness, and policy advocacy.
• Connect with Advocacy Stakeholders: Serve as primary point of contact with US patient advocacy groups. Build and maintain collaborative, productive, long-term partnerships. Work with patient organizations to compliantly support their growth and development into high-functioning and sustainable entities.
• Connect Across Chiesi USA: Partner with cross-functional teams (communications, shared value and sustainability, public affairs, commercial, medical, R&D, etc.), to enhance business goals. Coordinate and facilitate patient stories in compliance with policies and procedures to support communications and internal meetings.  
• Share Insights