Manager/ Sr. Manager, Patient Advocacy, Rare Diseases

About us

Based in Parma, Italy, Chiesi is an international research-focused pharmaceuticals and healthcare group with over 85 years’ experience, operating in 30 countries with more than 6,000 employees (Chiesi Group). To achieve its mission of improving people’s quality of life by acting responsibly towards society and the environment, the Group research, develops and markets innovative drugs in its three therapeutic areas: AIR (products and services that promote respiration, from new-born to adult populations), RARE (treatment for patients with rare and ultra-rare diseases) and CARE (products and services that support special care and consumer-facing self-care).
We are proud to be the largest global pharmaceutical group to be awarded B Corp Certification, a recognition of high social and environmental standards. We are a reliable company that adopts and promotes transparent ethical behavior at all levels. 
We are committed to embrace diversity, inclusion and equal opportunities. In fact, we are a global family made up of different cultures, different genders, generations, ethnicities, abilities, sexual identities and many other enriching diversities. 

Chiesi USA

Chiesi USA is a specialty pharmaceutical company focused on developing and promoting products for the hospital, adjacent specialty and rare disease markets. We are a B Corp™ and Benefit company awarded Top Employer status for six consecutive years and certified as a Great Place to Work. 
At Chiesi, we share an entrepreneurial spirit and act as a force for good, pursuing high social and environmental standards, to ensure the wellbeing of our people, patients, and communities. We offer a work environment where professionals have the opportunity to build a purposeful career focused on helping others while achieving a fulfilling work-life balance, meeting exciting challenges, and engaging in important and rewarding work.

What we offer

Chiesi offers competitive benefits, services, and programs that enrich the personal and professional lives of our employees.   Our shared values of passion, innovation, trust and integrity bring out the individual talents and diverse perspectives of each of our colleagues.  Our environment encourages each individual to reach his or her full potential and drive outstanding results. We celebrate that “Every one of us is different. Every one of us is Chiesi."

 

Purpose

Chiesi is looking for a creative, highly motivated, and compassionate individual for the position of Manager, Patient Advocacy in the Rare Diseases business unit.

The position works in close collaboration with, and reports to the Global Head of Patient Advocacy to develop and execute programs in the US, Canada, and Latin America (Americas) based on the global patient advocacy strategy. Rare disease therapeutic areas of focus include genetic lipoprotein, pituitary, and dermatological disorders. We are looking for someone who has the desire to make a difference for patients/community by developing and expanding relationship-partnerships with patient advocacy organizations and ensure that the needs and insight from these relationships are reflected in Chiesi’s decision-making process. You will represent the “voice of the patient” to educate internal cross-functional teams and champion patient-centered ideas and programs.
 

Main Responsibilities

•    Contribute to the Global Rare Disease patient advocacy strategy, reflecting Chiesi’s commitment to the patient community.
•    Develop and implement plans to engage European and emerging market patient communities across the Chiesi Rare Diseases portfolio, working cross-functionally with other business functions at HQ and affiliate levels.
•    Serve as primary point of contact to build and maintain collaborative, long-term partnerships with stakeholders and patient advocacy groups and compliantly exchange of information related to Chiesi Rare Diseases areas of interest.
•    Represent the patient perspective during planning strategy meetings and contribute to the successful implementation and achievement of goals.
•    Propose and implement patient advocacy programs and partnerships that include educational programs, advisory boards, patient speaker engagement, clinical trial awareness, policy advocacy, etc.
•    Work with external patient organizations to compliantly encourage their growth and development into high-functioning and sustainable organizations.
•    Work with advocacy groups to help them develop, grow, and build capabilities.
•    Champion the patient voice based on understanding the patient perspective to inform internal decision making.
•    Conduct engagements in adherence with legal, compliance and regulatory guidelines to ensure Chiesi Rare Diseases relationships with advocacy stakeholders are respectful