Senior Director, Patient & Professional Advocacy

How will your role help us transform hope into reality?

The Senior Director of Patient and Professional Advocacy will lead a unified strategy to connect patient advocacy and professional engagement for systemic mastocytosis (SM) and related mast cell diseases, with a strong focus on driving impactful initiatives to support the SM launch within the United States (U.S.). This role will cultivate strong relationships with key patient organizations, professional stakeholders, and institutions to advance awareness, advocacy, and patient care for these rare conditions. 

This leader will ensure patient insights are integrated into organizational strategies across R&D, Medical Affairs, U.S. Commercial, Corporate Affairs, and other functions, with a particular emphasis on supporting SM-related initiatives.

This position serves as a key advocacy liaison with professional societies, fostering collaboration between advocates and healthcare providers to raise awareness, encourage meaningful dialogue, and deliver innovative solutions that enhance patient care. The Senior Director will design and execute strategic engagement initiatives across therapeutic areas, ensuring alignment throughout the medicine development lifecycle, with a special focus on launch readiness and patient-centered outcomes for SM.

You will work as a collaborative member of the cross-functional team to bring the patient experience and perspective into development, trial planning & recruitment, and product launch. In partnership with the Patient Affairs Team, you will engage directly with the patient community to ensure their voices shape key decisions, meet critical education and advocacy needs, and enhance access to vital information for those affected by cancer and mast cell diseases.

Additionally, this role will integrate the insights and contributions of opinion leaders, patient advocacy groups, and professional societies into evidence generation, global advisory efforts, and strategic initiatives across medical affairs functions.

 

What will you do?

Strategic Leadership and Planning

• Design and implement a strategy to integrate patient advocacy and professional engagement for systemic mastocytosis (SM) and related mast cell diseases, building partnerships with professional societies, healthcare providers, and key advocates to drive shared initiatives in disease awareness, education, and patient support, with a specific emphasis on supporting non-promotional SM launch efforts by prioritizing disease education, patient advocacy, and professional engagement.
• Develop and lead a cross-functional annual plan to gather unfiltered patient insights through advisory boards and other research efforts with patients, advocates, and influencers.
• Drive the amplification of the voice of patients, influencing cross-functional teams to bring forward the patient voice in a tangible way aligned with our core value of “patient first.”
• Develop metrics to measure the success of advocacy initiatives, ensuring alignment with organizational goals.
• Manage budgets and resources for advocacy-related programs to maximize efficiency and community impact.
• Stay informed of emerging trends and opportunities in advocacy, adapting strategies to meet evolving needs.
• Ability to travel up to 30%, including domestic and international travel.             

Patient-Centered Advocacy and Insights

• Integrate the patient voice across all stages of drug development and launch planning to ensure therapies address real-world needs, with a key focus on SM.
• Partner with clinical research teams to ensure patient priorities are reflected in the development of meaningful clinical endpoints and outcomes, leveraging insights from patient advocacy groups, advisory boards, and real-world experiences to shape trial design and evidence generation.
• Act as a patient advocacy representative to ensure patient perspectives and needs are integrated into research, development, and strategic planning efforts.
• Integrate patient insights into development and commercialization efforts by recommending actionable, evidence-based strategies across teams and executing initiatives within the advocacy function to drive patient-centered decision-making, advance disease education, and enhance advocacy outcomes.
• Collaborate with Health Economics and Outcomes Research (HEOR) teams to integrate patient insights into evidence generation and strategic initiatives, ensuring SM-focused outcomes are prioritized.

Professional Advocacy and Collaboration

• Create and execute a comprehensive engagement strategy with healthcare providers (HCPs), professional societies, and institutions to advance patient advocacy within their communities.
• Build partne