Clinical Research Coordinator - Leukodystrophy Center

SHIFT:

Day (United States of America)

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A Brief Overview

The Leukodystrophy Center at Children's Hospital of Phila3delphia is seeking several Clinical Research Coordinators (CRCs) to support a large-scale biorepository and natural history study for children and adolescents diagnosed with rare genetic white matter diseases known as leukodystrophies. This work is being led by the Leukodystrophy Center’s clinical research investigators, including Drs. Adeline Vanderver, MD, Amy Waldman, MD, MSCE, Laura Adang, MD, PhD, and Mariko Bennett, MD, PhD, with support from a large team of research associates and scientists, data analysts and biostatisticians, regulatory experts, etc.

Natural history studies seek to identify demographic, genetic, environmental, and other factors that correlate with the development and outcomes of a disease and therefore play an important role in drug development for specific conditions. They are particularly useful in rare diseases, such as leukodystrophies, that exhibit substantial genotypic and/or phenotypic heterogeneity. CRCs work closely with peers and mentors to manage recruitment and enrollment of affected individuals into the study, coordination of research encounters according to a protocol, as well as downstream data collection, management, and analysis. Additional responsibilities include regulatory support, database management, manuscript preparation, and other administrative tasks.

This is a high-volume, fast-paced clinical research environment, and a successful candidate must be able to demonstrate an ability to multi-task proficiently; prior experience working or volunteering in a clinical research environment is strongly preferred. Outstanding written and oral communication skills are essential, as the position involves regular contact with physicians and clinical staff in the Division of Neurology, as well as with patients and their families.

This opportunity is ideal for individuals interested in a career in in the basic or health sciences. CRCs will have opportunities to contribute directly to scientific manuscripts, attend scientific conferences and family symposia, and collaborate with other world-renowned clinician scientists affiliated with the Global Leukodystrophy Initiative Clinical Trials Network (GLIA-CTN). CRCs will also be eligible to participate in the Pre-Doc Preparatory Program (P3) organized by the ITMAT Education (ITMAT Ed