Director, R&D Data Science – Patient Mastering, Consent & Preference Management
Johnson & JohnsonAbout the role
At Johnson & Johnson, we believe health is everything. Our strength in healthcare innovation empowers us to build a world where complex diseases are prevented, treated, and cured, where treatments are smarter and less invasive, and solutions are personal. Through our expertise in Innovative Medicine and MedTech, we are uniquely positioned to innovate across the full spectrum of healthcare solutions today to deliver the breakthroughs of tomorrow, and profoundly impact health for humanity. Learn more at https://www.jnj.com
Job Function:
Data Analytics & Computational SciencesJob Sub Function:
Data ScienceJob Category:
People LeaderAll Job Posting Locations:
Titusville, New Jersey, United States of AmericaJob Description:
Johnson and Johnson Innovative Medicine (J&J IM), a pharmaceutical company of Johnson & Johnson is recruiting for a Director, R&D Data Science – Patient Mastering, Consent & Preference Management.
This position has a primary location of Titusville, NJ but is also open to Spring House, PA or Cambridge, MA. This position requires up to 25% travel.
About Innovative Medicine
Our expertise in Innovative Medicine is informed and inspired by patients, whose insights fuel our science-based advancements. Visionaries like you work on teams that save lives by developing the medicines of tomorrow.
Join us in developing treatments, finding cures, and pioneering the path from lab to life while championing patients every step of the way.
Learn more at https://www.jnj.com/innovative-medicine
Position Summary
The Director, Patient Mastering and Consent & Preference Management leads the strategy, governance, and operationalization of patient-centric master data across R&D. This role is responsible for ensuring that patient, consent, and preference data are accurate, complete, traceable, and accessible across the enterprise, enabling trusted data use in clinical development, real-world evidence generation, and regulatory submissions.
As part of the R&D Data Science & Digital Health – Data Strategy & Products team, the Director will define and implement best-in-class approaches for patient mastering and consent and preference management. This includes harmonizing patient identifiers across systems, establishing clear stewardship practices, and embedding privacy and compliance requirements to support ethical and responsible use of patient data.
Key Responsibilities:
Patient Master Data Strategy & Execution
Lead the design and delivery of a forward-looking patient mastering strategy that ensures consistent, high-quality, and fit-for-purpose patient and participant data across R&D.
Develop and maintain a unified patient master that connects patient, account, and clinical study data for seamless interoperability.
Consent & Preference Management
Establish frameworks and tools for capturing, managing, and tracking patient consent, preferences, and permissions across the data lifecycle.
Ensure alignment with privacy regulations (e.g., GDPR, CCPA, HIPAA) and ethical standards for the use of patient data in research and clinical development.
Data Quality & Stewardship
Drive effective patient data stewardship practices across platforms and vendor ecosystems to ensure accuracy, completeness, and consistency.
Define and implement data quality metrics and SLAs for patient and cons
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